I was recently doing some research on my narcolepsy looking for some type of alternative to failed prescription drug treatments. Well I can't say failed exactly I became allergic to modafinil the main prescription drug. Anyway, one of the main drugs in the US for narcolepsy is GHB or xyrem. You may also know it as the date rape drug. Or liquid ecstasy. It's a pretty nasty drug to have to take long term.
GHB or (gamma hydroxybutyrate) helps Elevate orexin the neuro peptide that is low in narcoleptics. It's actually believed to be an autoimmune process that destroys the brain cells necessary for making that chemical. So I went about trying to find a more natural replacement for GHB.
I was surprised to find quite a bit of information available on (beta hydroxybutyrate) or BHB. BHB is a ketone that is neuroprotective and many people are talking about the ketongenic diet being helpful for neurological conditions. Funny thing is, I had recently researched and purchased a product called ketond for my wife. She was interested in seeing if she could lose weight and improve her diabetes. She didn't like the taste and she doesn't like drinking liquids and so she never tried it.
Turns out that ketond is actually almost entirely a patented form of BHB that has some excellent research behind it. So I went ahead and took the scoop and put it in the water as they recommended and boy it has an amazing effect. For the first time in years I put in a full day's work and I was tired from the physical activity, but I didn't have the muscle weakness and the cataplexy like I get from the narcolepsy. My thinking has been clearer I have had less anxiety and less dysphoria it's been amazing.
So far I have reduced the recommended dose by 80% and I am still getting a positive effect. I don't find that there is any tolerance build up, and there seems to be a little bit of carry over to the next day. So the blood levels are probably remaining up into the next day. That suggests I may be able to work down to a very low dose. Anyway, at my current usage rate I can go about 5 months on one package of ketoneaid which costs around $80 so for me it's fantastic.
There's reasonable research out there for anybody with a neurological condition especially some of the worst and harder the treat conditions. Such as, Alzheimer's dementia Parkinson's. Anybody suffering any of these conditions should go out and do the research on PubMed.
The stuff I am using is called ketond and has goBHB a trademark and tested form of BHB.
GHB or (gamma hydroxybutyrate) helps Elevate orexin the neuro peptide that is low in narcoleptics. It's actually believed to be an autoimmune process that destroys the brain cells necessary for making that chemical. So I went about trying to find a more natural replacement for GHB.
I was surprised to find quite a bit of information available on (beta hydroxybutyrate) or BHB. BHB is a ketone that is neuroprotective and many people are talking about the ketongenic diet being helpful for neurological conditions. Funny thing is, I had recently researched and purchased a product called ketond for my wife. She was interested in seeing if she could lose weight and improve her diabetes. She didn't like the taste and she doesn't like drinking liquids and so she never tried it.
Turns out that ketond is actually almost entirely a patented form of BHB that has some excellent research behind it. So I went ahead and took the scoop and put it in the water as they recommended and boy it has an amazing effect. For the first time in years I put in a full day's work and I was tired from the physical activity, but I didn't have the muscle weakness and the cataplexy like I get from the narcolepsy. My thinking has been clearer I have had less anxiety and less dysphoria it's been amazing.
So far I have reduced the recommended dose by 80% and I am still getting a positive effect. I don't find that there is any tolerance build up, and there seems to be a little bit of carry over to the next day. So the blood levels are probably remaining up into the next day. That suggests I may be able to work down to a very low dose. Anyway, at my current usage rate I can go about 5 months on one package of ketoneaid which costs around $80 so for me it's fantastic.
There's reasonable research out there for anybody with a neurological condition especially some of the worst and harder the treat conditions. Such as, Alzheimer's dementia Parkinson's. Anybody suffering any of these conditions should go out and do the research on PubMed.
The stuff I am using is called ketond and has goBHB a trademark and tested form of BHB.
